Comments on: Raspberry the Strawberry Mark http://www.nolanotes.com/2007/10/02/raspberry-the-strawberry-mark/ Sun, 23 Nov 2008 15:36:13 +0000 http://wordpress.org/?v=2.5.1 By: Nityanand Sharma http://www.nolanotes.com/2007/10/02/raspberry-the-strawberry-mark/#comment-3838 Nityanand Sharma Tue, 18 Nov 2008 16:18:14 +0000 http://www.nolanotes.com/?p=192#comment-3838 Hi, i read your daughter story and your concern for her .I have those red birthmarks on my right hand;from shoulder to finger; but, it is not raised above skin .It is normal to me . I know how it feels when some colleague inquire about it.I am 21years old and in collage.Sometimes those remarks really hurts me but my doctors told me that it is not curable. Hopefully her treatment will cure her. Hi,
i read your daughter story and your concern for her .I have those red birthmarks on my right hand;from shoulder to finger; but, it is not raised above skin .It is normal to me .
I know how it feels when some colleague inquire about it.I am 21years old and in collage.Sometimes those remarks really hurts me but my doctors told me that it is not curable.
Hopefully her treatment will cure her.

]]> By: liz dabner http://www.nolanotes.com/2007/10/02/raspberry-the-strawberry-mark/#comment-3476 liz dabner Fri, 26 Sep 2008 20:47:09 +0000 http://www.nolanotes.com/?p=192#comment-3476 Hi - I just read your story and it so reminded me of my daughter - she has a hemangioma which covers her whole calf and down to half of her foot! Hers ulcerated when she was 4 months and although over the years it has greatly improved she still has some lumps on her heel! She is now 8 years old. We chose not to have treatment to regress it because it had ulcerated and would only help it by about 3 weeks and I could not bear my 4 month old going under general anaesthetic (personal choice) but I did raise her to be mega confident and cool about her birthmark and it was never a "poorly leg" or anything like that. Now at 8 years she does get fed up explaining what it is to new kid so she just tells them some fairies put it on her at night or such stories and all these kids she meets want one too!!!!! Good luck with your little one, and remember its all these things that make them unique. I always say to my little girl to look around at others at school and she will see all are different some wear glasses or hearing aids etc etc but then she does not know how many tears I have spent on her over the years! Its just good to harden girls up a bit to it all! Liz xxx Hi - I just read your story and it so reminded me of my daughter - she has a hemangioma which covers her whole calf and down to half of her foot! Hers ulcerated when she was 4 months and although over the years it has greatly improved she still has some lumps on her heel! She is now 8 years old. We chose not to have treatment to regress it because it had ulcerated and would only help it by about 3 weeks and I could not bear my 4 month old going under general anaesthetic (personal choice) but I did raise her to be mega confident and cool about her birthmark and it was never a “poorly leg” or anything like that. Now at 8 years she does get fed up explaining what it is to new kid so she just tells them some fairies put it on her at night or such stories and all these kids she meets want one too!!!!! Good luck with your little one, and remember its all these things that make them unique. I always say to my little girl to look around at others at school and she will see all are different some wear glasses or hearing aids etc etc but then she does not know how many tears I have spent on her over the years! Its just good to harden girls up a bit to it all! Liz xxx

]]> By: shelley http://www.nolanotes.com/2007/10/02/raspberry-the-strawberry-mark/#comment-3407 shelley Thu, 18 Sep 2008 18:46:35 +0000 http://www.nolanotes.com/?p=192#comment-3407 My daughter has one on her face and they just told us to wait and see. I love this site so we don't feel alone. Thank you! My daughter has one on her face and they just told us to wait and see. I love this site so we don’t feel alone. Thank you!

]]> By: NOLA Notes » Blog Archive » Sun’s Hemangioma, Revisted http://www.nolanotes.com/2007/10/02/raspberry-the-strawberry-mark/#comment-3143 NOLA Notes » Blog Archive » Sun’s Hemangioma, Revisted Tue, 26 Aug 2008 15:57:12 +0000 http://www.nolanotes.com/?p=192#comment-3143 [...] I wrote some time ago about Sun’s hemangioma, or strawberry mark.  Several of you have e-mailed me inquiring about how she’s coming along.  I appreciate your concerns and wanted all to follow her progress. [...] [...] I wrote some time ago about Sun’s hemangioma, or strawberry mark.  Several of you have e-mailed me inquiring about how she’s coming along.  I appreciate your concerns and wanted all to follow her progress. [...]

]]> By: Holly http://www.nolanotes.com/2007/10/02/raspberry-the-strawberry-mark/#comment-3128 Holly Fri, 22 Aug 2008 03:37:40 +0000 http://www.nolanotes.com/?p=192#comment-3128 Hi, I know it is 8/22/08, but wondered how Sun was doing. I was looking up raspberry marks and came across your web page. The only thing that would really concern me as a parent with a child's birthmark like Sun's, is the internal aspect. If the birthmark is growing externally, it is possible it is more of a tumor than that of a birthmark. My daughter had a flat dark birthmark on her butt and when she became a teenager she asked to have it removed because other girls in the locker room showers could see it. So I imagine Sun will want it removed, but while she is little the pain might be less for her to deal with. I hope you fill all of us in on your decision. Give Sun a kiss from all of us in blog world! Hi, I know it is 8/22/08, but wondered how Sun was doing. I was looking up raspberry marks and came across your web page. The only thing that would really concern me as a parent with a child’s birthmark like Sun’s, is the internal aspect. If the birthmark is growing externally, it is possible it is more of a tumor than that of a birthmark. My daughter had a flat dark birthmark on her butt and when she became a teenager she asked to have it removed because other girls in the locker room showers could see it. So I imagine Sun will want it removed, but while she is little the pain might be less for her to deal with. I hope you fill all of us in on your decision. Give Sun a kiss from all of us in blog world!

]]> By: Jana http://www.nolanotes.com/2007/10/02/raspberry-the-strawberry-mark/#comment-420 Jana Tue, 18 Dec 2007 04:46:37 +0000 http://www.nolanotes.com/?p=192#comment-420 Hi. I stumbled upon your blog as I was searching for other blogs of parents with children having hemangiomas. My 11 month old baby girl has two strawberry hemangiomas on her torso (one about the size of the old silver dollars). She has had two pulsed-dye laster treatments so far, her next (and last) scheduled for January. She is scheduled for excision of the tissue in March! I can't wait to dress her in tank tops. At first, I was uncomfortable discussing her hemangiomas, but now, I'm proud of what we are able to do for her. We drive 2 1/2 (not too far, thank goodness) to a wonderful surgeon at a children's hospital in Arkansas. Hi. I stumbled upon your blog as I was searching for other blogs of parents with children having hemangiomas. My 11 month old baby girl has two strawberry hemangiomas on her torso (one about the size of the old silver dollars). She has had two pulsed-dye laster treatments so far, her next (and last) scheduled for January. She is scheduled for excision of the tissue in March! I can’t wait to dress her in tank tops. At first, I was uncomfortable discussing her hemangiomas, but now, I’m proud of what we are able to do for her. We drive 2 1/2 (not too far, thank goodness) to a wonderful surgeon at a children’s hospital in Arkansas.

]]> By: NOLA Notes » Blog Archive » Good News…But Not Quite http://www.nolanotes.com/2007/10/02/raspberry-the-strawberry-mark/#comment-932 NOLA Notes » Blog Archive » Good News…But Not Quite Fri, 07 Dec 2007 17:02:07 +0000 http://www.nolanotes.com/?p=192#comment-932 [...] EEG were good. But. (Why is there always a “but”?) But, because of her rather large hemangioma, there is the slightest concern that she could have an internal hemangioma that could be causing [...] [...] EEG were good. But. (Why is there always a “but”?) But, because of her rather large hemangioma, there is the slightest concern that she could have an internal hemangioma that could be causing [...]

]]> By: NOLA Notes » Blog Archive » Oh, the Things I’ve Heard http://www.nolanotes.com/2007/10/02/raspberry-the-strawberry-mark/#comment-419 NOLA Notes » Blog Archive » Oh, the Things I’ve Heard Mon, 05 Nov 2007 00:53:37 +0000 http://www.nolanotes.com/?p=192#comment-419 [...] Also in the French Quarter, to the hubs about Sun’s hemangioma, “Is that a birthmark or a tattoo?”  Tattoo, lady, on a five-month old.  [...] [...] Also in the French Quarter, to the hubs about Sun’s hemangioma, “Is that a birthmark or a tattoo?”  Tattoo, lady, on a five-month old.  [...]

]]> By: mybayouvieux http://www.nolanotes.com/2007/10/02/raspberry-the-strawberry-mark/#comment-416 mybayouvieux Wed, 10 Oct 2007 19:24:55 +0000 http://www.nolanotes.com/?p=192#comment-416 Thanks for sharing this. You are educating others by doing so. Now I will know what to say to my 4 year old when she points and asks, "What that?" which she will - like all children will. I would rather have an educated, truthful answer instead of shying away, pushing her finger down and asking her not to point while I mumble, "I don't know" or call it a boo-boo. Thanks for sharing this. You are educating others by doing so. Now I will know what to say to my 4 year old when she points and asks, “What that?” which she will - like all children will. I would rather have an educated, truthful answer instead of shying away, pushing her finger down and asking her not to point while I mumble, “I don’t know” or call it a boo-boo.

]]> By: Paige http://www.nolanotes.com/2007/10/02/raspberry-the-strawberry-mark/#comment-418 Paige Tue, 09 Oct 2007 23:06:47 +0000 http://www.nolanotes.com/?p=192#comment-418 Hey, my daughter has had 12 laser treatments for a hemangioma on her face. I know what you're going through and I definitely feel for you. Anytime you want to chat about it, feel free to email me. Paige Hey, my daughter has had 12 laser treatments for a hemangioma on her face. I know what you’re going through and I definitely feel for you. Anytime you want to chat about it, feel free to email me.

Paige

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